Joselito and Maria Carolina live in Esperança, a remote town in the Brazilian state of Paraíba. They are the parents of a little girl, Maria Gabriela, who was born with the syndrome associated with congenital Zika virus infection. The couple narrate the itinerary of medicalization in family life, caused by the epidemic, and claim the “right to know” as a way of protecting their life. We argue that the right to access information is a fundamental right of people affected by the epidemic, but “knowledge” presupposes a broad framework of recognition that includes sharing the necessary protection for a life with dignity.
